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1

Scrutinizing the Right Not to Know

Berkman, Benjamin E., Hull, Sara Chandros, Biesecker, Leslie G.

Journal:

American Journal of Bioethics

Year:

2015

Language:

english

File:

PDF, 68 KB

english, 2015

2

Promoting and Assessing ‘Deep Learning’ in Geography Fieldwork: An Evaluation of Reflective Field Diaries

Dummer, Trevor J. B., Cook, Ian G., Parker, Sara L., Barrett, Giles A., Hull, Andrew P.

Journal:

Journal of Geography in Higher Education

Year:

2008

Language:

english

File:

PDF, 147 KB

english, 2008

3

Primary care and mental health providersâ perceptions of implementation of pharmacogenetics testing for depression prescribing

Vest, Bonnie M., Wray, Laura O., Brady, Laura A., Thase, Michael E., Beehler, Gregory P., Chapman, Sara R., Hull, Leland E., Oslin, David W.

Journal:

Year:

2020

File:

PDF, 562 KB

2020

4

Wavelength-Dependent Damage to Adenoviral Proteins Across the Germicidal UV Spectrum

Beck, Sara E., Hull, Natalie M., Poepping, Christopher, Linden, Karl G.

Journal:

Environmental Science & Technology

Year:

2017

Language:

english

File:

PDF, 4.11 MB

english, 2017

5

Access to health insurance: Experiences and attitudes of those with genetic versus non-genetic medical conditions

Nancy E. Kass, Amy M. Medley, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin

Journal:

American Journal of Medical Genetics Part A

Year:

2007

Language:

english

File:

PDF, 122 KB

english, 2007

6

The Use of Medical Records in Research: What Do Patients Want?

Nancy E. Kass, Marvin R. Natowicz, Sara Chandros Hull, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin, Julia Slutsman

Journal:

The Journal of Law, Medicine & Ethics

Year:

2003

Language:

english

File:

PDF, 566 KB

english, 2003

7

Prenatal Whole Genome Sequencing : Just Because We Can, Should We?

Greer Donley, Sara Chandros Hull, Benjamin E. Berkman

Journal:

Hastings Center Report

Year:

2012

Language:

english

File:

PDF, 374 KB

english, 2012

8

The Invisible Hand in Clinical Research: The Study Coordinator's Critical Role in Human Subjects Protection

Arlene M. Davis, Sara Chandros Hull, Christine Grady, Benjamin S. Wilfond, Gail E. Henderson

Journal:

The Journal of Law, Medicine & Ethics

Year:

2002

Language:

english

File:

PDF, 1.48 MB

english, 2002

9

Disclosure, confidentiality, and families: Experiences and attitudes of those with genetic versus nongenetic medical conditions

Laura Plantinga, Marvin R. Natowicz, Nancy E. Kass, Sara Chandros Hull, Lawrence O. Gostin, Ruth R. Faden

Journal:

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Year:

2003

Language:

english

File:

PDF, 96 KB

english, 2003

10

Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research

Holly K. Tabor, Benjamin E. Berkman, Sara Chandros Hull, Michael J. Bamshad

Journal:

American Journal of Medical Genetics Part A

Year:

2011

Language:

english

File:

PDF, 124 KB

english, 2011

11

Time-Use Analytics: An Improved Way of Understanding Gendered Agriculture-Nutrition Pathways

Stevano, Sara, Kadiyala, Suneetha, Johnston, Deborah, Malapit, Hazel, Hull, Elizabeth, Kalamatianou, Sofia

Journal:

Feminist Economics

Year:

2019

Language:

english

File:

PDF, 606 KB

english, 2019

12

Medical privacy and the disclosure of personal medical information: The beliefs and experiences of those with genetic and other clinical conditions

Nancy E. Kass, Sara Chandros Hull, Marvin R. Natowicz, Ruth R. Faden, Laura Plantinga, Lawrence O. Gostin, Julia Slutsman

Journal:

American Journal of Medical Genetics Part A

Year:

2004

Language:

english

File:

PDF, 97 KB

english, 2004

13

Studies on plasminogen activator from pig kidney cell cultures. III. Purification and characterization

Jesse L. Bobbitt, Sara A. Clavin, James F. Hutchins, Glenda C. Arnett, Robert N. Hull

Journal:

Thrombosis Research

Year:

1980

Language:

english

File:

PDF, 2.64 MB

english, 1980

14

What Does It Mean To Be Identifiable?

Hull, Sara Chandros, Wilfond, Benjamin S.

Journal:

American Journal of Bioethics

Year:

2008

Language:

english

File:

PDF, 41 KB

english, 2008

15

Opportunities and challenges of integrating ecological restoration into assessment and management of contaminated ecosystems

Hull, Ruth N, Luoma, Samuel N, Bayne, Bruce A, Iliff, John, Larkin, Daniel J, Paschke, Mark W, Victor, Sasha L, Ward, Sara E

Journal:

Integrated Environmental Assessment and Management

Year:

2016

Language:

english

File:

PDF, 173 KB

english, 2016

16

SPIE Proceedings [SPIE Astronomical Telescopes and Instrumentation - Waikoloa, HI (Thursday 22 August 2002)] Future EUV/UV and Visible Space Astrophysics Missions and Instrumentation - The Eclipse mission: a direct imaging survey of nearby planetary systems

Trauger, John T., Hull, Tony, Stapelfeldt, Karl, Backman, Dana, Bagwell, Roger B., Brown, Robert A., Burrows, Adam, Burrows, Christopher J., Ealey, Mark A., Ftaclas, Christ, Heap, Sara R., Kasdin, Jer

Year:

2003

Language:

english

File:

PDF, 1.73 MB

english, 2003

17

Context-dependent medicinal effects of anabasine and infection-dependent toxicity in bumble bees

Palmer-Young, Evan C., Hogeboom, Alison, Kaye, Alexander J., Donnelly, Dash, Andicoechea, Jonathan, Connon, Sara June, Weston, Ian, Skyrm, Kimberly, Irwin, Rebecca E., Adler, Lynn S., Hull, J. Joe

Journal:

Year:

2017

Language:

english

File:

PDF, 2.24 MB

english, 2017

18

Alaska Native genomic research: perspectives from Alaska Native leaders, federal staff, and biomedical researchers

Hiratsuka, Vanessa Y., Hahn, Michael J., Woodbury, R. Brian, Hull, Sara Chandros, Wilson, David R., Bonham, Vence L., Dillard, Denise A., Avey, Jaedon P., Beckel-Mitchener, Andrea C., Blome, Juliana,

Journal:

Genetics in Medicine

Year:

2020

File:

PDF, 362 KB

2020

19

Ambivalence toward undergoing invasive prenatal testing: an exploration of its origins

Julie Chevalier Sapp, Sara Chandros Hull, Shelby Duffer, Sarah Zornetzer, Erica Sutton, Theresa M. Marteau, Barbara Bowles Biesecker

Journal:

Prenatal Diagnosis

Year:

2010

Language:

english

File:

PDF, 79 KB

english, 2010

20

The Views of Low-Income Employees Regarding Mandated Comprehensive Employee Benefits for the Sake of Health

Adikes, Katherin A., Hull, Sara C., Danis, Marion

Journal:

Social Work in Public Health

Year:

2010

Language:

english

File:

PDF, 840 KB

english, 2010

21

Reading between the lines: Direct-to-consumer advertising of genetic testing in the USA

Hull, Sara Chandros, Prasad, Kiran

Journal:

Reproductive Health Matters

Year:

2001

Language:

english

File:

PDF, 442 KB

english, 2001

22

AutoMorph : Accelerating morphometrics with automated 2D and 3D image processing and shape extraction

Hsiang, Allison Y., Nelson, Kaylea, Elder, Leanne E., Sibert, Elizabeth C., Kahanamoku, Sara S., Burke, Janet E., Kelly, Abigail, Liu, Yusu, Hull, Pincelli M.

Journal:

Methods in Ecology and Evolution

Year:

2017

Language:

english

File:

PDF, 1.04 MB

english, 2017

23

Changing the Conversation about The Ethics of Genomics and Health Disparities Research with American Indian and Alaska Native Communities: A Report from the Field

Hull, Sara Chandros

Journal:

Journal of Health Care for the Poor and Underserved

Year:

2019

File:

PDF, 1.03 MB

2019

24

(â)-Epicatechin Modulates Mitochondrial Redox in Vascular Cell Models of Oxidative Stress

Keller, Amy, Hull, Sara E., Elajaili, Hanan, Johnston, Aspen, Knaub, Leslie A., Chun, Ji Hye, Walker, Lori, Nozik-Grayck, Eva, Reusch, Jane E. B.

Journal:

Oxidative Medicine & Cellular Longevity

Year:

2020

File:

PDF, 1.26 MB

2020

25

Disclosure and management of research findings in stem cell research and banking: policy statement

Isasi, Rosario, Knoppers, Bartha M, Andrews, Peter W, Bredenoord, Annelien, Colman, Alan, Hin, Lee Eng, Hull, Sara, Kim, Ock-Joo, Lomax, Geoffrey, Morris, Clive, Sipp, Douglas, Stacey, Glyn, Wahlstrom

Journal:

Regenerative Medicine

Year:

2012

Language:

english

File:

PDF, 822 KB

english, 2012

26

Large Community Outbreak of Streptococcus pneumoniae Serotype 5 Invasive Infection in an Impoverished, Urban Population

Romney, Marc G., Hull, Mark W., Gustafson, Réka, Sandhu, Jat, Champagne, Sylvie, Wong, Titus, Nematallah, Anouf, Forsting, Sara, Daly, Patricia

Journal:

Clinical Infectious Diseases

Year:

2008

Language:

english

File:

PDF, 413 KB

english, 2008

27

A Clinical Service to Support the Return of Secondary Genomic Findings in Human Research

Darnell, Andrew J., Austin, Howard, Bluemke, David A., Cannon, Richard O., Fischbeck, Kenneth, Gahl, William, Goldman, David, Grady, Christine, Greene, Mark H., Holland, Steven M., Hull, Sara Chandros

Journal:

The American Journal of Human Genetics

Year:

2016

Language:

english

File:

PDF, 331 KB

english, 2016

28

SPIE Proceedings [SPIE SPIE Astronomical Telescopes + Instrumentation - Edinburgh, United Kingdom (Sunday 26 June 2016)] Space Telescopes and Instrumentation 2016: Ultraviolet to Gamma Ray - Galaxy evolution spectroscopic explorer: scientific rationale

den Herder, Jan-Willem A., Takahashi, Tadayuki, Bautz, Marshall, Heap, Sara, Ninkov, Zoran, Robberto, Massimo, Hull, Tony, Purves, Lloyd

Year:

2016

Language:

english

File:

PDF, 543 KB

english, 2016

29

Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants’ Relatives

Chan, Ben, Facio, Flavia M., Eidem, Haley, Hull, Sara Chandros, Biesecker, Leslie G., Berkman, Benjamin E.

Journal:

American Journal of Bioethics

Year:

2012

Language:

english

File:

PDF, 89 KB

english, 2012

30

Filaggrin gene mutation associations with peanut allergy persist despite variations in peanut allergy diagnostic criteria or asthma status

Asai, Yuka, Greenwood, Celia, Hull, Peter R., Alizadehfar, Reza, Ben-Shoshan, Moshe, Brown, Sara J., Campbell, Linda, Michel, Deborah L., Bussières, Johanne, Rousseau, François, Fujiwara, T. Mary, Mor

Journal:

Journal of Allergy and Clinical Immunology

Year:

2013

Language:

english

File:

PDF, 110 KB

english, 2013

31

Twelve thousand recent patellogastropods from a northeastern Pacific latitudinal gradient

Kahanamoku, Sara S., Hull, Pincelli M., Lindberg, David R., Hsiang, Allison Y., Clites, Erica C., Finnegan, Seth

Journal:

Scientific Data

Year:

2018

Language:

english

File:

PDF, 3.60 MB

english, 2018

32

Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants

Gliwa, Catherine, Yurkiewicz, Ilana R., Lehmann, Lisa Soleymani, Hull, Sara Chandros, Jones, Nathan, Berkman, Benjamin E.

Journal:

Genetics in Medicine

Year:

2015

Language:

english

File:

PDF, 449 KB

english, 2015

33

Surrogate Receptivity to Participation in Critical Illness Genetic Research

Freeman, Bradley D., Butler, Kevin, Bolcic-Jankovic, Dragana, Clarridge, Brian R., Kennedy, Carie R., LeBlanc, Jessica, Chandros Hull, Sara

Journal:

Year:

2015

Language:

english

File:

PDF, 154 KB

english, 2015

34

Medical Nursing

Berkley, Sara M., Hull, Edgar, Perrodin, Cecilia M.

Journal:

AJN American Journal of Nursing

Year:

1961

Language:

english

File:

PDF, 1.38 MB

english, 1961

35

Developing Cellular Therapies for Retinal Degenerative Diseases

Bharti, Kapil, Rao, Mahendra, Hull, Sara Chandros, Stroncek, David, Brooks, Brian P., Feigal, Ellen, van Meurs, Jan C., Huang, Christene A., Miller, Sheldon S.

Journal:

Investigative Opthalmology & Visual Science

Year:

2014

Language:

english

File:

PDF, 428 KB

english, 2014

36

Direct-to-Consumer Advertising of Genetic Testing

Gollust, Sarah E., Chandros Hull, Sara, Wilfond, Benjamin

Journal:

JAMA The Journal of the American Medical Association

Year:

2003

File:

PDF, 43 KB

2003

37

Reading between the Lines: Direct-to-Consumer Advertising of Genetic Testing

Sara Chandros Hull and Kiran Prasad

Journal:

Hastings Center Report

Year:

2001

Language:

english

File:

PDF, 58 KB

english, 2001

38

Detection Rates for Aneuploidy by First-Trimester and Sequential Screening

Baer, Rebecca J., Flessel, Monica C., Jelliffe-Pawlowski, Laura L., Goldman, Sara, Hudgins, Louanne, Hull, Andrew D., Norton, Mary E., Currier, Robert J.

Journal:

Obstetrics & Gynecology

Year:

2015

Language:

english

File:

PDF, 131 KB

english, 2015

39

O3-08-04: A MEDIATION ANALYSIS OF THE RELATIONSHIP BETWEEN WHITE MATTER HYPERINTENSITIES, CSF BIOMARKERS, AND COGNITION IN COGNITIVELY UNIMPAIRED AND IMPAIRED ADULTS

Ma, Yue, Bendlin, Barbara B., Johnson, Sterling C., Berman, Sara E., Gleason, Carey E., Clark, Lindsay R., Okonkwo, Ozioma C., Zetterberg, Henrik, Blennow, Kaj, Van Hulle, Carol A., Lazar, Karen K., I

Journal:

Alzheimer's & Dementia

Year:

2019

File:

PDF, 383 KB

2019

40

Recruitment Approaches for Family Studies: Attitudes of Index Patients and Their Relatives

Sara Chandros Hull, Karen Glanz, Alana Steffen and Benjamin S. Wilfond

Journal:

IRB Ethics and Human Research

Year:

2004

Language:

english

File:

PDF, 1.25 MB

english, 2004

41

SPIE Proceedings [SPIE SPIE Astronomical Telescopes + Instrumentation - Montréal, Quebec, Canada (Sunday 22 June 2014)] Space Telescopes and Instrumentation 2014: Optical, Infrared, and Millimeter Wave - Galaxy Evolution Spectroscopic Explorer (GESE): science rationale, optical design, and telescope architecture

Oschmann, Jacobus M., Clampin, Mark, Fazio, Giovanni G., MacEwen, Howard A., Heap, Sara R., Gong, Qian, Hull, Tony, Purves, Lloyd

Year:

2014

Language:

english

File:

PDF, 1.31 MB

english, 2014

42

SPIE Proceedings [SPIE SPIE Optical Engineering + Applications - San Diego, California, United States (Sunday 25 August 2013)] UV/Optical/IR Space Telescopes and Instruments: Innovative Technologies and Concepts VI - A small space telescope to conduct a large spectroscopic survey of galaxies

Heap, Sara R., Gong, Qian, Hull, Tony, Kruk, Jeffrey, Purves, Lloyd, Robberto, Massimo, MacEwen, Howard A., Breckinridge, James B.

Year:

2013

Language:

english

File:

PDF, 1.19 MB

english, 2013

43

Recontacting participants for expanded uses of existing samples and data: a case study

Chen, Stephanie C., Berkman, Benjamin E., Hull, Sara Chandros

Journal:

Genetics in Medicine

Year:

2017

Language:

english

File:

PDF, 478 KB

english, 2017

44

Rectal Prolapse in Octogenarians: Does Surgery Impact Daily Activity?

Bibi, Sara, Zutshi, Massarat, Gurland, Brooke, Hull, Tracy

Journal:

The American surgeon

Year:

2015

File:

PDF, 43 KB

2015

45

The unintended implications of blurring the line between research and clinical care in a genomic age

Berkman, Benjamin E, Hull, Sara Chandros, Eckstein, Lisa

Journal:

Personalized Medicine

Year:

2014

Language:

english

File:

PDF, 925 KB

english, 2014

46

Beyond Belmont: Ensuring Respect for AI/AN Communities Through Tribal IRBs, Laws, and Policies

Hull, Sara Chandros, Wilson (Diné), David R.

Journal:

American Journal of Bioethics

Year:

2017

Language:

english

File:

PDF, 351 KB

english, 2017

47

Harms of Deception in FMR1 Premutation Genotype-Driven Recruitment

Doernberg, Sam, Hull, Sara Chandros

Journal:

American Journal of Bioethics

Year:

2017

Language:

english

File:

PDF, 307 KB

english, 2017

48

Implementing the Single Institutional Review Board Model: Lessons from the Undiagnosed Diseases Network

Splinter, Kimberly, Hull, Sara Chandros, Holm, Ingrid A., McDonough, Tara L., Wise, Anastasia L., Ramoni, Rachel B.

Journal:

Clinical and Translational Science

Year:

2018

Language:

english

File:

PDF, 160 KB

english, 2018

49

TRANSFORMATION OF CSF BIOMARKER VALUES BETWEEN MEASUREMENT BATCHES

Ma, Yue, Van Hulle, Carol A., Norton, Derek L., Lazar, Karen K., Chappell, Richard J., Clark, Lindsay R., Illingworth, Chuck, Berman, Sara Elizabeth, Beckman, Elena, Zetterberg, Henrik, Blennow, Kaj,

Journal:

Alzheimer's & Dementia

Year:

2018

Language:

english

File:

PDF, 258 KB

english, 2018

50

A risk-stratified approach to colorectal cancer prevention and diagnosis

Hull, Mark A., Rees, Colin J., Sharp, Linda, Koo, Sara

Journal:

Nature Reviews Gastroenterology and Hepatology (formerly Nature Clinical Practice Gastroenterology and Hepatology)

Year:

2020

File:

PDF, 1.28 MB

2020

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